There will be no funeral today

By on Sep 6, 2017 in Blog Posts, Cancer, Spring | 9 comments

Acute fatigue – sleeping for most of the day – is the most common symptom of end stage cholangiocarcinoma.

The wrong definition of strong

By on Aug 31, 2017 in Blog Posts, Cancer | 5 comments

I’ve been told I am strong more times than I can count this year. Thank you.

The thing is, though, that I don’t feel strong at all. On the best days I feel like I’m doing what any other parent would do. On the worst days…well on the worst days, I long for the oblivion of sleep only to find myself staving off midnight’s monsters whilst thirsting for first-light.

A trip to the dietician

By on Aug 30, 2017 in Blog Posts, Cancer | 5 comments

“Mostly, I like eating sour worms.” Josh told the dietician. His tone was half-way between a confession and a challenge.

On the way here I’d shared my fear that I’d have to defend my any-calorie-is-a-good-calorie stance.

The dietician smiled and looked down at her notes.

Funny beats fear

By on Aug 20, 2017 in Blog Posts, Cancer | 1 comment

Funny is the magic-potion that allows us up to stomp straight into the dragon’s den and look it boldly, unflinchingly right in the eye.